Maxley had a good night. He only had to get roc a couple times and when he did, he recovered quickly. It was an uneventful morning. He got taken down for his broviac line (new IV) around 2:00. It was a few hours before he was back. Everything went well. During his procedure he had a TEE which is a transesophageal echocardiogram. It is similar to the echo he gets with the doppler on the outside except they use a scope down his throat to view the backside of his heart. It gives them more data than they can get from the outside. They had one of these scopes in during his open heart surgery too. There is a cardiologist there doing the procedure and reading the results. We hadn’t heard on it yet.
Remember how I said yesterday that we hadn’t met with hematology?. Well, that changed today. We met with hematology today because his platelets are low and they can not figure out why. There are 4 possible reasons that they could be low again and they have now ruled out 3 of them. The 4th is very unlikely so they really don’t know why. He got ultrasounds today to help rule out the other 3.
They changed one of his meds. One of his meds was making his heart pump but it also caused vessels to vasoconstrict which is narrowing of the vessels so they changed him to one that will just help with pumping. He is still really warm and feverish so now we are just trying to figure out if he is just a warm baby (which he always has been) or if he has a fever. The cultures have all come back negative. They just keep culturing new samples to see if something comes up.
We had a delicious turkey dinner at Ronald McDonald house tonight. We both walked down and grabbed a plate and came back up and ate. He had one minor episode after dinner but overall a good day.
I keep showing the nurses videos and pictures of him because he is so sweet and so so cute.