It has been a fun and eventful weekend!
I went to the Garth Brooks concert with my mom and sisters. IT WAS SO FUN!!! He puts on a great show and it was fun to get out and do something fun with my family.
While we were at the concert, my cousins came to play with Maxley. It seemed like they had fun playing with him!!
Maxley had a great weekend too! He is down to .5 liter of oxygen so the next step is off, that will maybe happen tomorrow? I have been saying that for a few days but we are just taking it slow. No need to rush.
We keep weaning his meds and that is going really well.
He is sitting more! I got him sitting for a second by himself. He slowly tips but the fact that just a few weeks ago he was lifeless on life support, this is amazing!!
We also got to do tummy time on Saturday for the first time!!! He seemed to like it!
We did more tasting tonight. This time he got squash! I don’t call it eating because it isn’t really, it is tiny bits on my knuckle or on his finger and the just sort of tries. He doesn’t not like it but he doesn’t care for more at a certain point too.
He has been incredibly happy. He is talking more and more and giggling a little too.
He has been sleeping through the night except maybe 2-3 times for just a minute or so. THIS IS A WIN!!!!! He used to sleep 45-60 minutes at a time, every time. No matter what. Mom and I were zombies!!!! If he is sleeping this well when we get home, that will make a big difference for me!
I met with neurology yesterday. When the doctor came in he said that basically the MRI didn’t tell them much. It is abnormal but it might be from being born early or it could be because of lack of oxygen. They can’t know for sure because we didn’t have one the first time he was here.
They said based on how interactive he is, that is a really good sign. He looks you in the eye, he grabs he uses both hands, he has good reflexes, he talks, mimics, good coordination, all of those things are really good signs.
There is no reason to believe he was massively affected by being on life support or everything he went through but there is no way to know.
I hate to keep saying it but doctors are wrong all the time anyway. The doctors here say it a lot. They are practicing medicine. That is all it is, practice. They don’t know how people do or why someone does this and another that with the same course of treatment. Maxley has been proving all the doctors wrong since he was in my tummy.
The doctors here couldn’t be happier that they were “wrong” about him. I don’t think any of them would have put a lot of money on Maxley ever leaving this hospital. The odds were not good and he was dying.
I am so incredibly proud to be the mom of such a fighter. I hope he looks back and can know how strong he was and how much he went through to be in this world.
I hope he knows how much everyone loves him. I hope he sees what a beautiful world and what a better world this is with him in it.
He is a bright light for me, for his daddy, and for a lot of people.
I hope everyone knows what a difference they make in the world. Everyone deserves to be here and is making people happy with their presence. It isn’t just because Maxley has been through a lot. We all deserve to be here and be happy.
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