I hope everyone had a wonderful holiday weekend.
Maxley and I had a really nice long weekend.
My goal of the weekend was to get some stuff done around the house which as you all know is never ending. Try being gone for 4 months and ALL of it just piles up.
It is a never ending chore. Everytime I walk into my closet to put clothes away I am smacked in the face with Scott’s htings and when the hell I am going to go through them.
I think I still feel like he is coming back so I just can’t put things away. It feels too final. For now, it stays where he last put things.
I sleep in his shirt every night but otherwise, I can’t bear to move his things.
I also really wanted to spend some time outside this weekend. Maxley has never really been outside much and so I was hoping to be able to do that more!
We spent the weekend at the pool, at a BBQ, hanging at the house and with family. Here are some pictures from my weekend.
Maxley has been sleeping incredibly well. I have had to wake him from his naps. He is sleeping all night waking just once or twice, he will nap for 5 hours if I let him.
It is quite the change. We think he might be a little too medicated so we will work on that this week.
He is SOOOOO happy. He is so smiley and interactive. He is playing with toys again and really lively!
He is on and off oxygen. Sometimes he is at 100% oxygen saturations and so we shut the oxygen off and he does well! It seems like he might just need it while he sleeps.
I can’t believe he is almost off of oxygen when just a few months ago he was fighting for his life as his lungs were failing.
It was such a nice weekend to take him on walks, go to the pool and just get out with him. I have never really taken him anywhere. It took a while to pack everything I need for him to get out of the house.
I have to think about meds, syrringes, rubber gloves, extra oxygen, everything for his broviac line and flush and much much more.
I am so lucky that I am able to take him places. I am just so thankful he is alive and well. I love getting to do normal mother and son things!!
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