Cute little Maxley fighting sleep.
The only big thing that happened today is we got moved… again.
They have so many post-ops and kids coming in that they had to move us up a floor to the overflow rooms. We are technically in the pediatric ICU floor but they have some rooms set aside for cardio patients.
This is a HUGE step to going home!!! It says, “you are so low priority that you can go to a totally different floor of the hospital because we don’t need to see you anymore!” This is a very good thing. Although, I already miss our nurse friends downstairs. ๐
We went for another long walk around both units today. All the nurses just love on him and can’t believe how well he is doing. I got pictures of him with some of our main nurses and they just love holding him.
I have said this before but I know there was a lot of people who weren’t sure we would ever walk out of here with him. The alternative makes me physically sick.
There were so many days I thought the same thing.
I am so lucky he is here.
Walking around by all the other families still on ECMO, the ECMO nurses tell us this is why they do what they do. That is the coolest thing to hear.
He is a miracle. He really is.
Someone said to me the other day that they were so scared reading my posts from those days. My response was that if they weren’t scared, I wasn’t doing a good job writing the posts. I was scared. I was so scared and I guess I hope that it came out in my writing. I just tried to be honest and write what was happening.
I also compared it childbirth for the fact that your brain doesn’t let you remember it all or you wouldn’t do it again. I don’t think your brain allows you to remember all of of the trauma or I wouldn’t be able to continue living with the PTSD of it all.
It sounds like we could be going home in the next couple weeks. We are just waiting on word from from the nursing agency that they are fully staffed. The hospital said they are officially ready to discharge us!!!!
That is unreal. They said they could have actually discharged us today but we want to wait until we have nursing at home.
I can’t believe we could be home soon!!! ๐
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